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I wasn’t as if I had been making the world or anything. I attended two meetings and ran a few quick errands. There was even at least one whole hour of lying down, full-blown rest time in there.  But, yesterday completely wiped me out.


As luck would have it, today was a snow day and, even if I hadn’t been so tired, I would have stayed indoors anyway. Even if this had not been a snow day, I would have been stuck here. But I was most definitely not alone.
The Boys

I have two very entertaining boys who were not in school today. We enjoyed some time together, making and eating cookies, and watching Narnia, Prince Caspian.
The Friends

I had  texts from concerned friends when they did not see me online. Ok, I’m either an addict or this is my career. I’m standing firm on the career, but there seems to be a slim line.
Twitter Love

I didn’t totally stay off line. I tweeted here and there and made a few Facebook posts. But again, I received both public and private requests asking how I was feeling. I was really hesitant about this Blog-a-thon and my choice to talk about this procedure openly.  But it has brought me closer to some friends, brought me new ones, and even brought to light a need.
Finding support

I mentioned in the history of all of this that I have Medullary Sponge Kidney (MSK.) Through my efforts to reach out to others with Kidney Stones, I have found at least one other with this problem.  I’m sure there are more, but I found a friend who truly understands the type and extent of my pain.  How many people are out there suffering by timing mind-numbing drugs? How many doctors out there treat MSK like other stones and don’t look at other possible treatment options? Is research being done to find better ways to treat this condition? I don’t know any of these answers, but I know  @LeeAase , Director, Mayo Clinic Center for Social Media.  I’m asking him, and anyone in the medical field, specifically in urology or nephrology to comment on this post and connect with me, with us. We want to find out more.  We want to do more.  We want to be more than drugged up zombies.


Now you know why I am itching to be back with you all, enjoying your company, teaching, speaking, laughing and loving the life that is mine.

I underwent the procedure to remove my stents today. The CT scan

was inconclusive so the hope was to remove the stents and see if that was the problem. As I mentioned before this is too soon for them to cone out. There are still lots of stone fragments that need to come out. Without


the stents this will be a painful process. I came home with aspirations of reading. I have three must reads in my possession.

Content rules by CC Chapman and Ann Handley.

Almost isn’t good enough by Wayne Elsey.

Branding Yourself by Erik Deckers and Kyle Lacy.

What I have managed to do is bend the binding, mark myself up with my highlighter, and place a sleep scar on my face in the impression of a book corner. I have tried to read, but the medication has other plans for today.

So now I bid you all good night. (This post was written quickly before I fell asleep again and on my iPhone. )

DISCLOSURE:I borrowed the book Content Rules from our local Library, I purchased Almost Isn’t Good Enough from Amazon, and I was sent a free copy of Branding Yourself, because I bugged Erik to death, and because I will be reviewing it for our local Business journal.  The Links to each book are in fact affiliate links to my Amazon account, where if you click that link and purchase the book I am suppose to receive a small percent. (Big deal. Google it, order it from your local book seller, who cares as long as you invest in one or all of these books to enrich yourself.)

Like I said I am finding this easier to blog about other stuff than to blog about what I am going through.  At the start I thought I had it under control, (an illusion I know.) I knew what to expect as I have undergone this very procedure before. I even told several people that I knew what to expect, and that I was not going to kid myself about the am

ount of pain and the amount of time I would be out of commission. I also followed those statements with “but this one won’t be as bad, because they (my kidneys) are cleaner than they were the first time, and it is only one side.”

I was so wrongIn the days preceding the procedure, I had some significant kidney pain on the left side. So on the day of my scheduled cleanout, I told the doctor about it and asked that he look into it. I remember him saying “good call on the left kidney” when I woke up. Turns out they did clean out both sides. Over the next few days I had discomfort.  I expected discomfort. What I did not expect was that my pain and discomfort would get worse over the passing days. I wrote it off with the rationalization that you always hurt worse 24-48 hours after a crash.

Gaining more than expected

So I started retaining water, or so I thought. My torso started swelling and over the past few days I have grown to look a solid 8-9 months pregnant! So on top of the pain of the kidneys being beaten from the inside out, and the discomfort of having hard plastic crazy straws stuck inside me, I now had the pressure and discomfort of being pregnant!

I have had x-rays and a CT scan. I have no answers yet. But the doctor did wish to remove the stents tomorrow. It is a bit early and I still have lots of stone fragments that will need to pass. Maybe it is my body rejecting or revolting about the stents. Maybe it is my bottom of the barrel revelation that I do not want to be fat (or pregnant) ever again.  Maybe there is another medical reason for me to be so swollen.  But that is the hardest part: The Uncertainty. I just don’t know what is going on.

Thank you to all my friends for your continued help, support love and prayers.

Yesterday was New Year Eve, and our anniversary. I spent the better part of my day in bed, reading tweets, facebook posts, blogs, and bouncing back and forth between several books. All this was accomplished while still taking many cat naps.

I wasn’t shy about answering the many times people asked “how are you feeling.” I watched as people dropped off line for a few hours as parties started, and held conversations with friends online that weren’t out on the town.

I mentioned in a recent post that I was seeking out other stone formers, and that I “Usually asked some questions, but did not make any real sparks.  (People in pain are not real conversationalists.) “

So last night as I was about to ring in the new year, I reached out to several more people who mentioned kidney stones in their tweets. A spark was found.  We exchanged a few comments and questions as we had both had our procedure the same day. She then tweeted me the best new years toast!

@DanaMNelson Toasting rx med w/ u 4 Happy New Year!


Thanks Patty for the best NYE toast!

As an update to yesterday’s post when I thought I had failed at my original task of this blog-a-thon, I received this comment:

“You did not fail! I blogged nearly every day and certainly would not have if it hadn’t been for you!”

This was from Mandy Bell Gregory. She has been blogging with us daily. Please check out her blog at:



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